Where Our Work Began

Laying the Groundwork for Change

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Before the launch of the Collective Action for Race Equity in Health and Social Care (CARE-HSC), our team led the landmark TIDES Study – Tackling Inequalities and Discrimination Experiences in Health Services. TIDES provided the first comprehensive evidence on how racism, discrimination, and inequality shape the experiences of health and social care staff and the people they support. This research laid the foundations for CARE-HSC, revealing the urgent need for structural change and centring lived experience in efforts to advance race equity. The lessons, partnerships, and insights developed through TIDES continue to inform and inspire our work today.

What was the TIDES study?

The Tackling Inequalities and Discrimination Experiences in health Services (TIDES) study investigated how discrimination experienced by both patients and healthcare practitioners may generate and perpetuate inequalities in health and health service use. The TIDES study was funded by the Wellcome Trust and the Economic and Social Research Council (ESRC)

TIDES Phase 1 was a five-year project which utilises mixed methods to identify inequalities in health service use and explore discrimination by both healthcare practitioners and patients. TIDES Phase 1 was funded by the Wellcome Trust.

PROJECT 1: SECONDARY DATA ANALYSES
Project 1 used survey data and electronic health records to investigate inequalities in health service use.
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PROJECT 2: SURVEYS AND INTERVIEWS
Project 2 used the findings from Project 1 to facilitate conversations with healthcare practitioners about both experiencing and witnessing discrimination to see what impact these experiences have on inequalities in health service use. 
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PROJECT 3: VIRTUAL REALITY
Project 3 built on the findings from the first two projects to look at how healthcare practitioners interact with patients in Virtual Reality Environments (VREs). 
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PROJECT 4: INTERVENTION FRAMEWORK
Project 4 involved talking to carers, service users, healthcare practitioners, community members and policy makers from Projects 1-3 to develop an intervention framework.
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TIDES Phase 2 was a continuation of previous work to understand how discrimination contributes to inequalities in health and health services, and aims to continue this work by examining the impact of COVID-19 on inequalities by ethnic minority people working in health and social care. TIDES Phase 2 was funded by the Economic and Social Research Council (ESRC)  as part of UK Research and Innovation’s rapid response to COVID-19. 

QUANTITATIVE STUDY
The quantitative study developed and incorporated an ethnicity module into the NHS CHECK survey to collect quantitative data on ethnic inequalities during and after COVID-19. 
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QUALITATIVE STUDY
The qualitative study collected new rich qualitative data on ethnic inequalities among NHS staff to help understand the mechanisms underpinning inequalities. 
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MODIFIED DELPHI
A modified Delphi process utilised mixed methods to guide the development of  a ethnicity module questionnaire and interview topic guides, a Race Equality Impact Assessment toolkit, and VR training materials.
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How can I access the TIDES Dataset?

Data from TIDES Phase 1 (both survey and interviews), as well as the TIDES Phase 2 survey (also known as the Inequalities Survey described here), are available upon request and subject to data security requirements. For further information on these data and how to apply for access, please contact tides@kcl.ac.uk

Access to our dataset requires adherence to the TIDES Data Transfer & Publication policies; 

TIDES Data Transfer Agreement

TIDES Publication Policy

TIDES Phase 2 Interviews: 

Qualitative data gathered during the pandemic for TIDES Phase 2 are currently under embargo while members of the TIDES team publish initial papers describing and analysing these data. More information about these data can be found at the King’s Open Research Data System (KORDS) and the UK Data Archive.

The UK Data Service is a national data service that provides free access to a range of social and economic data collections including UK census data and government funded surveys as well as qualitative and business data. The UK Data Service is funded by the Economic and Social Research Council and designed to meet the data needs of researchers, students and teachers from all sectors, including academia, central and local government, charities and foundations, independent research centres, think tanks, and business consultants and the commercial sector. Guides and video tutorials are available on the UK Data Service website to show users how to access these data. 

Meet the Team

Find out more about the team involved in Collective Action for Race Equity in Health and Social Care

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